Date of Defense
5-5-2025 10:00 AM
Location
H2, 1005
Document Type
Thesis Defense
Degree Name
Master of Public Law (MPL)
College
College of Law
Department
Public Law
First Advisor
Prof. Fatiha Gourari
Abstract
This study aims to provide an analytical comparison of legal protection mechanisms for genomic data in the United Arab Emirates and the United States by examining the legislative frameworks governing this sensitive information. Genomic data is among the most private forms of personal information due to its significant use in medicine, insurance, and employment—necessitating robust legal protections against misuse and genetic discrimination. In the UAE, the research focuses on the 2021 Personal Data Protection Law, which outlines rules for handling genomic data and imposes penalties for violations. It also examines the UAE Human Genome Law, which regulates the collection and use of genetic information, emphasizing confidentiality and compliance with ethical and international standards. In the U.S., the study analyzes the Genetic Information Nondiscrimination Act (GINA), which prohibits the use of genetic data in employment and health insurance. The research assesses the law’s effectiveness amid rapid advancements in genetic science. The study concludes with a comparative analysis of both legal systems, identifying similarities and differences, and offers recommendations to strengthen legal frameworks and ensure comprehensive protection of individual genetic privacy and rights.
Criminal Protection of Genomic Data: A Comparative Analytical Study
H2, 1005
This study aims to provide an analytical comparison of legal protection mechanisms for genomic data in the United Arab Emirates and the United States by examining the legislative frameworks governing this sensitive information. Genomic data is among the most private forms of personal information due to its significant use in medicine, insurance, and employment—necessitating robust legal protections against misuse and genetic discrimination. In the UAE, the research focuses on the 2021 Personal Data Protection Law, which outlines rules for handling genomic data and imposes penalties for violations. It also examines the UAE Human Genome Law, which regulates the collection and use of genetic information, emphasizing confidentiality and compliance with ethical and international standards. In the U.S., the study analyzes the Genetic Information Nondiscrimination Act (GINA), which prohibits the use of genetic data in employment and health insurance. The research assesses the law’s effectiveness amid rapid advancements in genetic science. The study concludes with a comparative analysis of both legal systems, identifying similarities and differences, and offers recommendations to strengthen legal frameworks and ensure comprehensive protection of individual genetic privacy and rights.
